Resource Links

Everyone at Presbyterian Blume Pediatric Hematology and Oncology Clinic is here to answer your questions and give you as much information about pediatric cancer or blood disorders as you’d like. Please feel free to ask questions whenever you visit our office, or call us at 704-384-1900. And, you can access our free health library by clicking here.

We have also compiled the list of links below. These are some of our favorite and most reliable sources of information and support available:

American Cancer Society

Provides information on cancer research, education, patient services, advocacy, and rehabilitation.

Association of Pediatric Oncology Nurses

Promotes educational opportunities, research, certification, advocacy, and affiliation for pediatric oncology nurses and other pediatric hematology/oncology healthcare professionals.

Blood and Marrow Transplant Information Network

Serves the needs of persons facing a bone marrow, blood stem cell, or umbilical cord blood transplant. Founded in 1990 by a bone marrow transplant survivor, BMT InfoNet strives to provide high quality medical information in clear language, so that patients can be active, knowledgeable participants in their healthcare planning and treatment.

Bone Marrow Donors Worldwide

Dedicated primarily for professionals who are involved in the process of trying to find an unrelated bone marrow donor or cord blood unit for a patient. However, links and information are also provided for patients, for potential donors, and for researchers. Here, you can read about the increase in the number of donors and donor registries, the emergence of cord blood registries, and about the computer match programs that are used to find donors for leukemia patients.

Camp Care

Camp CARE ( Cancer Ain’t Really the End ) was formed in 1985 by a group of health-care professionals. Staffed entirely by volunteers and funded by donations, we provide over 100 campers each year with a normal camping experience. A chance to get away from the realities of living with cancer. A chance to share their thoughts with other children like themselves.

American Childhood Cancer Organization

Offers a wealth of resources on understanding cancer for kids, teens, and their siblings. Also, provides information on cancer treatments, support programs, and advocacy initiatives.

Caring Bridge

Offers a free service that enables patients and their families to quickly and easily build personalized Web pages for those receiving care. Caring Bridge can be used for a wide variety of situations: for loved ones going through hospice care, ongoing treatment, medical emergency, and more. It has custom layouts for newborns, children, and adults. Visit this site for a few examples of the ways Caring Bridge can be used.

ChemoCare.com

Provides the latest information about chemotherapy to patients and their families, caregivers, and friends. Helps readers understand chemotherapy, how to manage its side effects, and how to eat well while undergoing chemo treatments. Guides visitors to a variety of resources that may help them deal with diagnosis and treatment.

CURE Childhood Cancer

Find out how to help cure cancer by contributing a tax-free donation to CURE’s research efforts. Or learn about CURE’s ongoing education on pediatric cancer topics and support for patients and families.

KinderMourn

Addresses the special needs of grieving parents and provides supportive services and counseling for families whose lives have been shattered by the death of a child. Assists children and young people who are grieving the death of a family member or friend.

Leukemia and Lymphoma Society

Dedicated to funding blood cancer research, education, and patient services in its mission to cure leukemia, lymphoma, Hodgkin’s disease, and myeloma, and to improve the quality of life of patients and their families. This is the web site for the Leukemia and Lymphoma Society, the world’s largest voluntary health organization.

National Brain Tumor Foundation

Offers information about malignant and benign brain tumors, brain tumor medical centers, the latest treatment for brain tumors, and connects people to a network of brain tumor survivors.

National Cancer Institute

A site for the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.

National Childhood Cancer Foundation

Strives to reduce the devastating impact of cancer on infants, children, adolescents, and young adults by funding life-saving research. The National Childhood Cancer Foundation also promotes education and advocacy for the needs of children with cancer.

National Children’s Cancer Society

The National Children’s Cancer Society provides direct financial support to children with cancer and their families for expenses related to cancer treatment. We assist children from birth to age 18 and their families throughout the United States. Information on donations, special events, and volunteer opportunities can be found on the site.

National Hemophilia Foundation

Communicates the latest bleeding disorder news to healthcare professionals and consumers.

National Marrow Donor Program

Describes sources of stem cells used for transplantation (marrow, peripheral blood, and umbilical cord blood) and diseases treatable by stem cell transplants. Offers resources and topics that may be of interest to patients who have been diagnosed with a disease that can be treated by a bone marrow or blood stem cell transplant.

Pediatric Brain Tumor Foundation

Keeps public informed about the great strides science is making in the treatment and prevention of brain tumors. Seeks to find the cause and cure of brain tumors in children by supporting medical research, increasing public awareness of the disease, and aiding in early detection and treatment of childhood brain tumors.

Signature Hair Bows

It is our passion that we can help bring a smile to every little girl, no matter the circumstance that they may be facing.

Sickle Cell Information Center

Provides sickle cell patient information, news, research updates, and worldwide resources for patients with sickle cell disease.

SuperSibs

SuperSibs recognizes brothers and sisters, ages 4 to 18, of children with cancer.

Teens Living With Cancer

Site for teens that features cancer facts and the personal stories of teens living with cancer.

Victory Junction Camp

A camp for chronic or terminally ill children located in Randleman, NC.

Zach Ramsey Fund

The Zach Ramsey Children’s Cancer Fund exists to help families whose children are undergoing cancer treatment at the Presbyterian Blume Pediatric Hematology and Oncology Clinic. The fund assists with the tremendous financial strain of both medial and miscellaneous expenses.

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